Artist Statement
We created “Sophia’s World” as a tribute
to the community that supported our family throughout the
life of our daughter, Sophia Herzog Sachs. Sophia lived
beautifully for over four years with Niemann-Pick Disease,
Type A.
Throughout her life, we reached out to anyone that we
thought could help, whether we knew the person personally
or not. We searched for curative and palliative care therapies,
ideas, inspiration, and hope. We were gratified by the
way that people responded. A network of caring support
consisting of friends both old and new, family, and community,
began to form around Sophia and our family —healthcare
providers and alternative healing practitioners, researchers,
insurers, social service and public agencies, spiritual
advisors and artists —came into this circle of
caring support.
As this happened, we witnessed something extraordinary— an
environment had been created around Sophia that enabled people
to bring not only their minds, but also their hearts into
the healing process. This “Healing Community” had
created a nurturing environment for a child with a life threatening
condition that celebrated life and brought hope and learning
to everyone involved. |
