Nothing is so devastating as the moment when
you are told that your child has a life-threatening condition.
Then, you start to realize that our present healthcare system
is not designed to meet many of your child’s and your family’s
needs. It is fragmented, impersonal, and disempowering. You
feel isolated, overwhelmed, and more than a little terrified.
Now, imagine a world where such families
are not alone—a
world where the collective healing wisdom of humanity is accessible
to all, especially children thought to be incurable, and where
families find strength, hope and healing through their communities.
The mission of Sophia’s Garden Foundation
is to proliferate a compassionate and highly effective way of
caring for children with life-threatening conditions, a way that
enables families to take charge of their child's health care
to ensure the quality of all their lives. We call this approach Healing in Community.
It is our belief that healing is, inherently, a community endeavor
and that the healing in community approach can:
||Improve the quality of
life for child and family
||Expand society’s capacity for
caregiving, while reducing social costs of illness
||Create a wellspring of growth and
healing for all community members
||Develop an open, living knowledge
base of healing that is accessible to all
||Focus on living fully and embracing
Our first initiative is to create an integrated,
Web-based survival kit for families of children diagnosed
with life-threatening conditions, Healing in Community™
Online, that informs, supports and enables families to
harness the power of community to address all of their needs—physical,
emotional, financial, social, cultural and spiritual.